New Focus in Life

comments 2

Quite a lot has changed in the last 16 months since my previous blog post. I relocated from Chicago back to Ohio, have two Akitas, changed jobs briefly and then went back to my previous job, work full-time out of my house, and… I have lupus.

It’s crazy how fast life can hit you. What you could previously do without giving it a second thought – like waking up without pain and brain fog – is no longer possible. Every day is a new challenge. Some days are fantastic with minimal pain and excess energy; other days are burdened with hives, poor lung function, joints that feel as though they’re actively burning in a fire, and so on.

I may have lupus, but I am not lupus.

My focus in life has shifted. I try to focus less on the struggles and more on the achievements. That can be difficult, especially when you can no longer do things you once could. Years ago I could (and did) workout every day, but now working out depends on my pain level and whether I have time to recuperate from the muscle soreness and joint pain. For now, I am walking at least 30 minutes every day and closing all of my Activity rings on my Apple Watch. This new way of life is a weird balance, but I am slowly figuring it out.


  1. Candy says

    Much of this resonates with me! My recent MS diagnosis has me struggling to learn my new “normal”.


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